Watch Jenny Lee Stern's Interview with Jay
Jenny Lee Interviews Jay at the 2024 DIFJ Event
$200,000 +
Annual Cost of Care
5,000
New ALS Cases Per Year (US)
30,000
Persons Living with ALS (US)
Inspiring the Fight Against ALS
Jay created the 90 Foundation, a 501(c)3, to raise money for research to treat and cure ALS. The foundation is dedicated to making sure that 100% of the money raised goes directly towards research, and the foundation works directly with organizations like the Houston Methodist Neurological Institute and ALS Therapy Development Institute to ensure that happens.
As a patient who has lived with the disease for many years, Jay has spent a lot of time researching, designing, and implementing various things to make his life more productive. He has personally contributed a number of inventions to help others with ALS to communicate and remain mobile, including the Eye Drive, which allows users to move and steer their wheelchairs with their eyes.
Jay continues to inspire others with his Facebook posts and his blog (all done with his eyes).
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